More awareness on Complex Regional Pain Syndrome

The need for more awareness on Complex Regional Pain Syndrome (CRPS) was highlighted at the May monthly meeting of Cavan County Council.

Cllr Áine Smith (FF) explained that CRPS is “one of the most painful chronic conditions” but went on to say “many have never heard of it”.

She’s calling on the Minister for Health to raise more awareness regarding the “chronic disease” and also to call on the Minister for Children and Disabilities to ensure that Ireland participates in the European Disability card scheme.

Cllr Smith said that raising awareness is “vital” to support those living with the condition and also to “push” for “earlier diagnosis, better treatment options and more comprehensive research”.

She added: “CRPS is a chronic pain condition that typically affects a limb after an injury or surgery.”

Cllr Smith further described the “intensity” and “persistence” of the pain.

“Patients may experience burning, stabbing, or throbbing pain, along with swelling, temperature changes, and skin discolouration. Over time, the condition can spread and become debilitating.”

She said the cause of the condition “isn’t fully understood” and went on to say that it is “notoriously underdiagnosed or misdiagnosed”.

“Awareness is the first step toward change,” she outlined.

“CRPS warriors often fight their battles silently. By spreading awareness, we can amplify their voices,” continued Cllr Smith.

She outlined that those who have the condition have asked her to ask that Ireland take part in the European Disability Card scheme.

“At present, Ireland does not yet participate in the European Disability Card scheme,” she outlined, adding that in 2023 the European Commission proposed a mandatory EU-wide Disability Card.

“Discussions are ongoing to expand the card across all EU member states in the coming years,” she stated, describing that the card would make is “easier” for people with disabilities to access certain services or benefits when travelling or living in another EU country.

Cllr Shane P O’Reilly (II) supported the motion, adding that “there is no cure” for the condition.

“I didn’t know much about it myself until very, very recently,” he admitted, adding that people are “not getting the help” they need.

Cllr Patricia Walsh (FF) also supported the motion, describing how “people are struggling”.

“Some people actually can’t get out of bed,” she added.

Meanwhile Cllr Clifford Kelly (FF) agreed that it is “something that needs to be seriously looked at”.